Wednesday, 29 May 2013

Dylan Henry Jones - Month 16

Tuesday - 18Jun13
 Well, it was meant to be a busy day for Dylan with a hat appointment in the morning and the usual 3-monthly paediatrics meeting in the afternoon.  Unfortunately we weren't concentrating and went to the wrong city for the first.  Oops.  The second (the paediatrics appointment) went very well.  Which to be honest we were expecting.  We've seen a few people over the last month some by accident (the physio) and others by appointment (the dieticians), and all are very impressed with his progress.  He now weighs almost 19pounds (8.59kg) which means he is most definitely back on the charts although he is in danger of falling off the length chart.
Dylan not quite sure about the ice cream, but the biscuits are good
He now has 8 teeth and uses them to good effect on the destruction of defenceless bananas and biscuits (we were slightly put-out by the description "home-style ginger biscuit" in the dieticians report: I spent a good..ooh.. half an hour making those!).  Like all toddlers if he likes something he can eat an awful lot of it, if he doesn't like it then it's going on the floor.

His walking is getting closer and closer to house destruction time.  We must get round to baby-proofing the house.  And he thinks that slides are fantastic: he sits at the top with this very large grin and then shuts his eyes and giggles all the way down before demanding that it be done again.  And he is starting to get to want his own way and making it very clear his unhappiness if he doesn't get it.  There may be trouble ahead!

So at the moment we are in a very good place.  He's doing very well at the moment and doing all the right things and has been for a while.  He has been ill (with a cold) and while he was reasonably ill we didn't need to take him to hospital which is a first!  Nursery are very pleased with him and his progress too... he also seems to be enjoying his time there which makes dropping him off less traumatic.


Wednesday - 29May13
Dylan has made a very important development today.  He's learnt how to stick out his tongue.  We are immensely proud.  What's more he's also very pleased with this progress.
Dylan doing his best spaniel impression
He's not quite back to full-health: his breathing still sounds horrible, he's coughing more than he normally does and he's not eating or drinking at "normal" levels yet but he has increased in weight marginally over the last fortnight (we're talking about 100 grams) which is good given his lack of appetitie and occasional vomiting.  But having said that, it doesn't really stop him at the moment as he's spending a lot of time trying to run around (which also means Mum or Dad having to run around as he can't walk independently.  Yet) and generally causing as much carnage as possible whilst smiling very sweetly.  Same as every other little boy I would imagine!

Today we went to Bristol to see a cardiologist about pulmonary hypertension and co-arctations (again).  On the basis that Dylan doesn't end up with some horrible chest infection far worse than we've seen so far then we can forget about it.  Which is exactly what the last cardiologist said.  The co-arctation is going to be monitored.  So, yes there is a narrowing that is generating higher pressures than normal but it's not yet a problem that needs intervention.  It is anticipated that it probably will need something done at some point but what and when is up in the air.  So no real news from today other than we have a new cardiologist in Bristol with whom we have more confidence in.


Dylan "snacking" on a chunk of bread he liberated from the bread bin...

Finally, all hail to the Queen of Knitting Needles who has been making monkeys since Dylan was born and has finally finished a "batch" of 20 monkeys all in various colours and sizes and raising over £300 for CDH UK in the process.