Dylan Henry Jones - Week 11

Friday - 11May12

Chief mouser of the South West hard at work

Well, despite close attention from the Cat, the mouse made it of the house alive. Needless to say that had to happen midway through a late night feed.  The Cat is still sulking.

Yesterday (Thursday) we had our visit from the paediatric nurse.   Yes, it's weight check time again and a loud hurrah and hurrumble for Dylan has put on weight for the second consecutive week.  Exactly the same as last time; 0.2kg.  This puts him up to the dizzying heights of 3.6kg (or 7lb 15oz for those of us who still use old money).  Even better than that is that the tube has gone! Only temporarily.  We're going to see whether he manages to continue gain weight without the need to tube feed when he doesn't manage his full 2am feed.  The next weigh-in is Tuesday.

The lack of tube makes giving medicines slightly more tricky as the medicines are for the most part thick and sticky.  We've also changed feeding teat: Medela - the breast pump people - make teats as well and that Dylan seems to get on with that much better than the hospital ones.  The Medela ones mimic breast feeding which mostly means he can pause feed whilst still having the teat in his mouth.  With the hospital ones this just results with milk over his face.


One of the Mothers from the CDH website page posted the following link to an Australian video

http://sixtyminutes.ninemsn.com.au/stories/8273200/little-miracles
This shows the FETO procedure as undertaken by Prof. Nikolaides which they had done 2 years ago when it really was experimental.  Still incredible to watch.
(on Firefox the video doesn't show properly in standard, but if you double left-hand (mouse) button click it will go into full-screen mode, I don't know how it views in other browsers.  Needless to say the iPad doesn't like it).

Wednesday - 09May12
Conspiracy theorists rejoice! There is proof that babies and cats can communicate in order to drive parents to distraction.  It's the only reason that they both manage to create chaos simultaneously.  The latest was Dylan pulling his tube out just as the Cat decided that what we really needed was a live (unparalysed) mouse in the living room.  At 2am.  At least Dylan was awake enough not to need the tube for his overnight feed and the mouse is ... somewhere in the house.  Probably.  But not in the Cat.

Last weeks weight gain has meant that we've been able to play with our new toy (a baby sling) as he's now big enough to be allowed in it.  So we got out for a walk over the Quantocks on Sunday enjoying the surprisingly good weather.